On this last day of Breast Cancer Awareness Month, I just want to remind you that it is not just about one month but about one life, one family, one community, and one world at a time.
I still believe there is a cure out there but in the meantime there are things you can do to help yourself and your loved ones fight against a disease that robs so many families of the caregivers. Early detection is key. Get them Smash-A-Grams, do your monthly feels, and have honest conversations with your doctor.
I had a discussion recently with someone about mental health in the church. We need to be okay to not be okay every single day and support each other. Pray. Get Counseling. Then Pray some more. Below is what poured from my heart:
Forgive Me. I lied to you.
I lied to you a lot.
A clever, cute, quip.. “blessed and highly flavored.”
Yes. I am blessed.
But the flavor of the month is salty.
Both to cover up the flavor of decade.
See I am a child of the Most High God.
Above and Not beneath
Head and Not the tail.
World Class Devil Stomping Overcomer
You ain’t supposed to know that my weeping endured for more than just a night.
Tell me, is it joy in the morning?
Or joy in the mourning?
Or joy for the mourning while I am mourning in the morning.?
Am I a sinner because my mourning don’t feel blessed?
Or right now cause I ain’t comforted ?
Or I don’t wanna be a peacemaker this time?
Am I a sinner because I am still trying to forgive but can’t ever forget ?
Hands in places they should not be
Eyes on things they should not see
Tattooing my flesh & heart worthless but powerful words that should not be.
That won’t let me be
My poor in spirit just feels broke.
Even with all I have……worked for and given,
Isn’t it strange that I miss the home without the indoor plumbing where we were all together….living.
I was only meek because I was taught to be. Choked first by the annotate to never let them see me sweat.
Another time by a well armed versed.
And then again by my own brown skin.
I tried … even crowned my way thru it.
But chemo was persecution
Radiation was an insult
Diagnosis was an assault on my character .
I try to rejoice and be glad…..or at least appear that way.
Honestly I do know that there is greater in the Kingdom. My pure in heart is seeing God .
Just can’t understand why so many took the trip
In one year
In one day.
I still hungry Lord. I am still thirsty.
Here’s my cup Lord .
(Evictions. Convictions. )
It’s all full up Lord.
(Riots and Racism)
(Say Their Names)
Cause I want no more of this Lord
Full and starving
Empty and overflowing
Dying and want nobody knowing
Hush children. Hush children
Don’t let nobody be calling my name.
Is there a balm in Gilead? Do I rub it on? Do I smoke it? Does it come in sugar free gummy form?
Me who never wanted to be touched, now misses the laying on of hands.
Grease my forehead and make it stop hands.
Speak a word to me.
Just don’t kill me softly.
Just still hurting.
Walking by faith and not by sight. You run into stuff.
I suppose I will answer in fuller detail later. But I was asked earlier about my “why me?” moments. My answer was this: of course I have them. But I try simply to avoid them because then I find my spiritual self asking my carnal self “why not me? ” to which both sides have lofty answers. And then the fight ends with the question to which no pure soul can answer with a holy heart “Who would I rather God had picked instead?”
Cancer sucked. Surgery sucked. Chemo really sucked. And I suppose my upcoming radiation will too. But no where do I believe I have a target on my back. My name is not Job or Job-ette. We live in a world where stuff happens even to those who love God and are loved by God. The magnificent difference is I am never alone. I would have lost my mind without His ever presence.
Would I have chosen this path? A resounding NOPE. But nor would I choose to hand it off to someone else. There is none else worthy to walk in my shoes nor is none else deserving to have the pain I bear walking in my shoes.
I fight on believing that purpose and goodness shall come out of this. That nothing I have experienced, bad or good, is in vain.
I shall not waste time wondering “why” on many days. I would rather spend the many days wondering how to powerfully live.
In the grand scheme of things, there was nothing nuclear about it. The world has not ended. But it certainly felt like I had been hit by a bomb.
I was prepared and unready all at the same time. My infusion nurse had warned me. My oncologist had warned me. Every book and every fellow survivor had warned me.
It had even warned me. In the three days prior, and without further description, everything below my neck had made a steady march toward the shower drain. Adding insult to injury by forcing me to repeatedly clean the “shower shroom” I had purchased in case of such of an event.
I even had a beautician and a back-up beautician on stand by. I was going to take control of this. I was not going to let it beat me. I was going to be brave and rid myself of the trauma. Was even going to go live on social media with it. I was going to declare that “Pink Warriors” rule. A group of us girls were going to fight back.
But this was not to be the case. Whether this was bad luck or whether it was divine providence, I don’t know. Every single lady involved but me was busy that Friday night. My power moment was quickly becoming a whimper.
I was desperate. I was edgy, but I was sure I could make it to Saturday morning. “Just go to bed”, I told myself, “It will be okay”.
Taxotere aka “The Hair Taxi” said ” Yeah, Right!”
Ever had a sunburn on your head? That’s what it felt like when the “glow bugs” came to fight. Woke me up at 3 a.m. with a jolt. Instantly, my hand rises for my head. Ascends empty and descends full of what used to be.
My face was wet with mourning before I even picked up the comb and started to loosening the plaits I had been wearing to lessen impact. But nothing could save me from the pain in my scalp nor the pain in my spirit as they began to fall on their own. For each one I pulled, another came with it.
Exhausted from trying to keep up, I woke my husband up at 4 a.m . I sat between his knees on the floor to let him finish the job. Towel around my shoulders and bag in hand to protect the carpet.
We turned on the comedy channel, though neither of us really felt like laughing. I was attempting to drown out the screaming that was going on in and on my head.
After nearly two straight hours of digging, pulling and stopping to cool my scalp with a towel, I was left with a gallon sized freezer bag of what used to be black (and grey) natural curls and braids.
My “Whoopie Goldberg” pigtails use to extend just about my shoulders. Very few in my professional life had seen them. I kept them neatly tucked under a curly wig of about the same length during daylight hours. They were my little secret that got exposed the minute I hit my door frame each night and all weekend long. Only my closest family and friends had seen them. Oh, and occasionally, the mail man who I felt no need to be fake with.
My “Whoopies” were my guilty little pleasures. My real me. My freedom. And now I was carefully gathering them for a funeral procession in a zip lock bag coffin. A sobbing march to the super can outside so I would not be tempted to keep them.
SIDE NOTE: It is just hair. I know that. But it was mine. The next person with a full head of hair who has not experienced chemo or alopecia…. and says that I should just get over it….. best believe they should stand at least my arm span away for a week or more.
In rotation, for 50 years. Together, thru a gazillion style and color changes. Fads and bad hair cuts. Extensions and protective wigs. Personality, definition, style! Alter ego! It was mine and I need at least 24 hours to pout and eat some of the crap I have been avoiding. I will smile again Sunday.
As I ran my hand again through the remnant still attached to me, the physical pain was very much there. I would spend most of the morning with cold towels on my head trying to minimize the burn. I tried to talk to God to do the same for my soul. I have come to the conclusion that I was not allowed to beat this part of the race because He needed me to “feel” this for somebody else. Testimonies are never for ourselves, but for those in ear shot or in the reading.
I will be real with you. This day, though horrible for a few hours, was truly never really about hair. It was about the feeling of breast cancer robbing me of something else.
Please, don’t read pity …. read mad as spit.
I know what millions of men and women feel as surgery changes your body. Scars criss-cross in vain places. Things taken off and things inserted in. Skin texture changes and color changes. Ruined taste buds. Weight gain and weight loss. Steroid hots and steroids cold. Steroid cries and steroids mean. Just this week, I met a lady who lost her hearing to chemo. Another of whom it caused heart problems.
Let’s not forget people talking to your chest like your tumor will glow and reveal itself or your missing boob will reappear before their eyes. Or the dumb things that are said like “my 3rd cousin didn’t make it”, “where’s your faith” or “it’s just hair”.
I got myself together Saturday morning. Since the beauticians were still not available, I grabbed my daughter and headed straight to the neighborhood barbershop where I take my boys to. I knew “Pop Trim” as he is affectionately called would be opened early. I needed to get this over with quickly. I called ahead and was greeted with a ” I got you girl”.
The shop is normally full of noise and a lot of trash talking guys. I am one of only a few ladies that can hang in such a place…. well trained by my large family of uncles and male cousins. But today I was first in the door and it was almost silent.
Pop, a veteran of the Armed Forces and a retired firefighter with strong hands, handled me like he was cradling a newborn baby. His quiet demeanor was almost unsettling as I had never seen it before… and probably never will again.
Scissors and clippers flying around my head, he took breaks in between when the sobs came. He never acknowledge them. Didn’t hand me a tissue. He just let me have my tears. I thought I wanted an army of women with me to cheer me on. But the healing touch of this stately rescuer who knew how to properly war was more than enough.
My eyes flowed upward toward the ceiling seeking my true Rescuer. I know He is with me and will never leave me comfortless.
And then into the eyes of my daughter who was filming my buzz cut. I pray for the day that breast cancer goes playing in traffic. I want my girly girl to never know what this feel like.